Political & Advocacy
We want to help raise awareness of CDKL5 Deficiency Disorder and help raise money to fund research in the fight for the cure. CDKL5 Deficiency Disorder mutation on the CDKL5 gene leads to improper neurological development. Most funding for the cure is being paid for by affected families out of pocket, and we want to help in any way we can.
General members :
Members :
###
/ Board members :
/ Board :
###
Roles :
Preferred Skills :
